Patients’ views on improving sickle cell disease management in primary care: focus group discussion
نویسندگان
چکیده
منابع مشابه
Patients' views on improving sickle cell disease management in primary care: focus group discussion
OBJECTIVES To assess sickle cell disease (SCD) patient and carer perspectives on the primary care services related to SCD that they receive from their general practitioner (GP). DESIGN A focus group discussion was used to elicit the views of patients about the quality of care they receive from their primary health-care providers and what they thought was the role of primary care in SCD manage...
متن کاملViews of patients about sickle cell disease management in primary care: a questionnaire-based pilot study
OBJECTIVES To determine how patients with sickle cell disease (SCD) perceive the quality of care that they receive from their primary healthcare providers. DESIGN A questionnaire-based pilot study was used to elicit the views of patients about the quality of care they have been receiving from their primary healthcare providers and what they thought was the role of primary care in SCD manageme...
متن کاملThe Effectiveness of self management program on quality of life in patients with sickle cell disease
Background Sickle cell patients suffer from many physical, psychological, and social problems that can affect their quality of life. To deal with this chronic condition and manage their disease and prevent complications associated with the disease, they must learn skills and behaviours. The aim of this study was to determine the effectiveness of self-management programs on quality of life in t...
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This small-scale study develops a new methodology for investigating which ethical principles of health care rationing the public support after discussion and deliberation. In ten groups of about six people, members of the public are asked to discuss a hypothetical rationing choice, concerning four identified patients who are described in general terms but without detailed information. It is exp...
متن کاملComparing the effect of self-care education and pain self-management on the nature of pain and quality of life in patients with sickle cell disease
Background & Aim: Self-care and self-management, as two effective strategies play an effective role in controlling pain and quality of life. Therefore, considering the characteristics and dimensions of these two concepts, this study aimed to compare the effect of self-care education and pain self-management on the nature of pain and quality of life in patients with sickle cell disease. Methods...
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ژورنال
عنوان ژورنال: JRSM Short Reports
سال: 2012
ISSN: 2042-5333
DOI: 10.1258/shorts.2012.011153